Dear Torrie,
This week you really thru us for a loop. On top of everything you got the stomach bug and you were throwing up and pooping for days- pleasant i know. tuesday you stayed home with daddy and guess what- you started walking! and i told him he was a liar but when you got home you were walking! you walk a bit like Frankenstein as you wont bend your knees but you are getting there!!!
Wednesday you stayed home with mimi and you slept most of the day, and then thursday was your CF test, there was another little boy there- he looked very sickly and unfourtunately they didnt collect enough sweat on him to get an answer. but you my dear, sweat like a hog!! they said theyd have the answer friday morning and they did and it was negative! great news you do not have CF! Mommy was thrilled and so was everyone else, now we just have to get your adenoids out and move on from there.
so hopefully this week brings new ventures and happiness and we get to move your surgery up from september and that you get better at walking everyday!!
Love you, mommys computer is broken so I havent been able to post as much.
love,
mom
Sunday, July 22, 2012
Tuesday, July 17, 2012
Torrie took her first steps!!
I took a video ive got to see how to upload it!!
Friday, July 13, 2012
Dear Torrie
Dear Torrie,
It has been a particularly crazy week this week filled with alot of emotions that mommy may not be able to express. I promise to do my best to chart out this process with you, so one day you will know exactly what happened in your baby years.
This week you had two very special appts, one with the ENT (ears nose and throat) and one with the Pulmonologist (lung doctor), neither appt went fantastic but it is opening doors to alot of new things that will be happening in the next few months.
At the ENT, you were noted for having abnormal sized adenoids, increased mucus, and fluid in the ears. they do two simple procedures to fix that- A. remove your adenoids and B. put tubes in your ears. Mommy was satisfied by this and it seems like a simple fix. You will be having this done in September, unless the next tests show something different it might happen sooner.
At the Pulmonologist, things started out similar. She agreed that you need your adenoids out and I was happy about that, but then came the bad news, this is where mommy is struggling- my emotions are all over the map and I just dont know how to feel right now with no answers, just waiting, and questioning where everything could go wrong.
When you have increased mucus it could be caused by a deadly genetic disease called Cystic Fibrosis (CF) in order to have CF you have to have two recessive genes. Mommy carries one and it is unknown if daddy does. They now think you may be the one in the million to inherit this disease. Mommy will not go into detailed discription about the disease but basically it is a grim prognosis and that leaves mommy very hurt, this is something I cannot protect you from, this is something that will make you suffer.
Next week you will be going for the test to see if you have this disease- I am praying to god that you dont and so are many other people.
Turns out, if that comes out negative then we are hoping after your adenoids are out then you will stop being sick and you may just have asthma in the end, mommy is hoping this is the case. Right now there are so many unknowns that I just want to start off with this letter so when I write again it begins to make more sense.
I'm hurt tor, you already fought for your life, you already proved you wanted to be here, you already proved your mommys girl and that no matter what you made my life complete, and I love you. I wish i can take all the bad things away that have ever hurt/will hurt you. I just cant deal right now, I am hurt, I am very hurt.
I love you will all my heart. I am praying that you are a healthy girl,
Love,
Mom
It has been a particularly crazy week this week filled with alot of emotions that mommy may not be able to express. I promise to do my best to chart out this process with you, so one day you will know exactly what happened in your baby years.
This week you had two very special appts, one with the ENT (ears nose and throat) and one with the Pulmonologist (lung doctor), neither appt went fantastic but it is opening doors to alot of new things that will be happening in the next few months.
At the ENT, you were noted for having abnormal sized adenoids, increased mucus, and fluid in the ears. they do two simple procedures to fix that- A. remove your adenoids and B. put tubes in your ears. Mommy was satisfied by this and it seems like a simple fix. You will be having this done in September, unless the next tests show something different it might happen sooner.
At the Pulmonologist, things started out similar. She agreed that you need your adenoids out and I was happy about that, but then came the bad news, this is where mommy is struggling- my emotions are all over the map and I just dont know how to feel right now with no answers, just waiting, and questioning where everything could go wrong.
When you have increased mucus it could be caused by a deadly genetic disease called Cystic Fibrosis (CF) in order to have CF you have to have two recessive genes. Mommy carries one and it is unknown if daddy does. They now think you may be the one in the million to inherit this disease. Mommy will not go into detailed discription about the disease but basically it is a grim prognosis and that leaves mommy very hurt, this is something I cannot protect you from, this is something that will make you suffer.
Next week you will be going for the test to see if you have this disease- I am praying to god that you dont and so are many other people.
Turns out, if that comes out negative then we are hoping after your adenoids are out then you will stop being sick and you may just have asthma in the end, mommy is hoping this is the case. Right now there are so many unknowns that I just want to start off with this letter so when I write again it begins to make more sense.
I'm hurt tor, you already fought for your life, you already proved you wanted to be here, you already proved your mommys girl and that no matter what you made my life complete, and I love you. I wish i can take all the bad things away that have ever hurt/will hurt you. I just cant deal right now, I am hurt, I am very hurt.
I love you will all my heart. I am praying that you are a healthy girl,
Love,
Mom
Sunday, July 8, 2012
Dear Torrie
Dear Torrie,
Yesterday you turned 13 months old and today is one year from the day you came home last year! it's your come home day from the Yale NICU! We didnt celebrate your 13 month birthday yesterday but we did celebrate your come home day today. Everyone laughed when mommy said we were celebrating but I guess they will never understand how much emotion comes with this day.
One year ago when you were born I was told you might not breath on your own, walk on your own, function on your own, feed yourself, or what have you, basically if you functioned properly it would be a complete blessing, and that it is. I was also told you wouldnt come home until august! AUGUST thats two whole months from when you were born and it was closer to my due date. I also refused to go back to work until you came home and we were settled. and to my surprise you came home very early! after only 31 days in the NICU you were sent home :) I was so incredibly happy and scared and you were still only 4lbs 12 oz. When we got home I wasnt sure what to do with you, I kept moving you to your bassinet to my arms to your swing to your boppy I was so confused that day! but we slowly meshed together and now we are inseperable!
heres you one july 8th 2011
and heres you today july 8th 2012
boy you look so different and got so smart and big and guess what all those things they said you wouldnt do- you do all that and more!
im so proud of you and how far youve come, I love you so much!
Welcome home baby I will never let you go again!
heres your welcome home muffins we had instead of cupcakes!
Love you always,
Mom.
Yesterday you turned 13 months old and today is one year from the day you came home last year! it's your come home day from the Yale NICU! We didnt celebrate your 13 month birthday yesterday but we did celebrate your come home day today. Everyone laughed when mommy said we were celebrating but I guess they will never understand how much emotion comes with this day.
One year ago when you were born I was told you might not breath on your own, walk on your own, function on your own, feed yourself, or what have you, basically if you functioned properly it would be a complete blessing, and that it is. I was also told you wouldnt come home until august! AUGUST thats two whole months from when you were born and it was closer to my due date. I also refused to go back to work until you came home and we were settled. and to my surprise you came home very early! after only 31 days in the NICU you were sent home :) I was so incredibly happy and scared and you were still only 4lbs 12 oz. When we got home I wasnt sure what to do with you, I kept moving you to your bassinet to my arms to your swing to your boppy I was so confused that day! but we slowly meshed together and now we are inseperable!
heres you one july 8th 2011
im so proud of you and how far youve come, I love you so much!
Welcome home baby I will never let you go again!
heres your welcome home muffins we had instead of cupcakes!
Love you always,
Mom.
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